Client Service Receipt Inventory for rare genetic
diseases in Hong Kong: abridged secondary publication
CCY Chung, WHS Wong, SL Lee, BHY Chung
Department of Paediatrics and Adolescent Medicine, School of Clinical Medicine, LKS Faculty of Medicine, The University of Hong Kong, Hong Kong SAR, China
- The Client Service Receipt Inventory for the rare genetic disease population in Hong Kong (CSRI-Ra) was validated to capture both direct and indirect costs of rare diseases from a societal perspective.
- Pilot testing of the CSRI-Ra demonstrated moderate to good agreement between utilisation records and electronic patient records, indicating that criterion (concurrent) validity was acceptable.
- The CSRI-Ra, alone or in combination with electronic patient records, is valid for health- and social-care planning.